Add...why? why? why? My first thought? Why do we keep adding to this list? How much does one person have to endure.
It's not an easy journey being a single mom BUT add health challenges and your stress level just took the elevator up a floor depending on your situation. We added Epilepsy to our Alphabet. How did that happen? Cortical irritability causing partial seizures? What the hell is that! HERE'S the WHY! WARNING...THE SAILOR MAY APPEAR...Why the fu** us? WHY! Tourette Syndrome, Cleft Palate, ADD, OCD, Learning Disabilities, Hypotonia, Congenital Heart Defect, & Developmental Disabilities...THAT WASN'T ENOUGH!? DEEP DEEP BREATH...OK maybe a couple of them. Fast forward from Monday to Wednesday. I've had time for it to sink in. It was something that in the back of my mind was expected due to the last few months of seizures that had developed since having her "biggy" in October but nothing really prepares you as a parent to face a diagnosis of any kind. Again, not life threatening...others are facing so much more than this mama, but one more mountain to climb. WE also realize...The heart is healthy, the cleft repaired, the TS kid now grown and has to face his challenges. We know these are all things that we have met head on and we've handled. We get it, we're blessed that way. Now? Now I do what I've done in years past when faced with something new. Something new on our plate. I read, I research, LOL now I "Google". I educate, I advocate, and I keep on moving. I run my mouth for my sons & my daughters, for myself, and for others affected by #Tourette Syndrome, #Developmental #Disabilities, #Cleft Palates, #Heart Defects, and NOW #Epilepsy! Welcome to my alphabet world! My alphabet babies.
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Cynthia"Don't put an age limit Archives
July 2018
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